Tuesday, April 24, 2012

my sister is a heart mom

My sister just shared a blog post about what it's like to be a mom
of a child with a congenital heart defect.

I think she's amazing:



In her words:
This is a GREAT insight into what being a heart mom is like. Yes, it's overwhelming most of the time but there are so many moments that make it worth it! I love #5 "For us, it is the little things that are the biggest achievements. A first birthday is a success to be celebrated. Every heart beat is our pride and joy and just the fact that they were here and lived for moments or days or hours with broken hearts is enough for us"


The latest update on Stella with some good news:


Not only has she turned 1 but she also had the best echocardiogram yet! Her most recent echo (April 12th) looked great - her pressures were lower than the previous appointment and the right baffle that has been problematic (mostly because it is so hard to find) was seen and looked normal! We were at once a month echos and now we don't have to have another echo for 2 months!!! We had also started preparing for a cardiac cath to happen probably this summer so that our cardiologist could get a better view of her pulmonary veins - but with the great echo results it is seeming that a cardiac cath will not be necessary! Stella weighed in at 18 lbs 7 ounces and was 29 inches long :)





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